Tuesday, 27 May 2025

 Paul MERCURIO (Hastings) (10:24): I have had a series of firsts over the last couple of weeks. Two weeks ago in the southern library in Parliament the Connective Tissue Disorders Network Australia held their first ever public forum. I would like to thank the member for Northcote for organising and hosting this event. This meeting was the first time doctors, clinicians, advocates, ministers, members of Parliament and people with lived experience joined together to share their stories of this terrible condition and advocate for support, awareness, acknowledgement and a commitment to working together to help those that have these conditions. It was the beginning of a very important discussion.